Sunday, May 3, 2015

RRMS or SPMS? - It's not one or the other

It is unfortunate that we feel the need to classify our MS as either or when in all cases it is most likely both.  I have seen SPMS patients have exacerbations (relapses) and I have been progressing as an RRMS patient.  What separates a bad week from a relapse?  Most likely not mechanism but only scale.  So if your relapses are too small to be seen by your Nuero you must be SPMS?

I don't think so, but I'm sure the insurance companies do.  If copaxone is doing its job (lowering relapse rate) and the patient is still progressing - does that mean they no longer need copaxone?  That's a load of hogwash - but the insurance companies will surely note that glatrimar isn't FDA approved for SPMS.  Ok, no worries, this patient will soon be able to take biotin (MD1003).  Until they have a relapse and realize that SPMS and RRMS are not either or but both and.

Which is why I am taking copaxone AND biotin (10 mg 20x daily with sunflower seeds)

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