Tuesday, May 26, 2015

Day 42

210 mg yesterday.  Started doubling up on some night doses if I'd slept more than two hours.

Sunday, May 24, 2015

Day 40

40 days is a long time.

325 days to go (at least)

210 mg yesterday

Tuesday, May 19, 2015

Day 35

Yesterday was a bad day in terms of on time logging (meetings, mediation) but 210 mg.

Saturday, May 16, 2015

Updated Metrics Chart 05/16/15

Bad measurements today.  On the whole the left leg still seems to be trending up and the right leg is still flat.

Monday, May 4, 2015

Updated metrics chart

I am beginning to think that I've hit on a good metric with the one leg stand.  The charts are consistent with my experience.  My right leg hasn't improved but my left leg has.

Hopefully the right leg will be coming along in time.  The earliest I expect to see improvement is 2 months. 

One leg stand times seem to be up on the left leg, right leg lagging. It's still very early.

Sunday, May 3, 2015

Day 20

Plenty more d-biotin has arrived, so from here on out it will all be d-biotin unless specifically noted otherwise.

Yesterday was 200 mg which seems to be the most common daily dose.

RRMS or SPMS? - It's not one or the other

It is unfortunate that we feel the need to classify our MS as either or when in all cases it is most likely both.  I have seen SPMS patients have exacerbations (relapses) and I have been progressing as an RRMS patient.  What separates a bad week from a relapse?  Most likely not mechanism but only scale.  So if your relapses are too small to be seen by your Nuero you must be SPMS?

I don't think so, but I'm sure the insurance companies do.  If copaxone is doing its job (lowering relapse rate) and the patient is still progressing - does that mean they no longer need copaxone?  That's a load of hogwash - but the insurance companies will surely note that glatrimar isn't FDA approved for SPMS.  Ok, no worries, this patient will soon be able to take biotin (MD1003).  Until they have a relapse and realize that SPMS and RRMS are not either or but both and.

Which is why I am taking copaxone AND biotin (10 mg 20x daily with sunflower seeds)

Day 19

200 mg yesterday.  Good soccer game yesterday - may note on metrics page.

Friday, May 1, 2015

Day 18

195 mg yesterday.  Have my trusty travel bottle of d-biotin and sunflower seeds.  Did a poor job of logging doses but didn't miss any.  11:00 dose was very late so took 1.5 doses