Sunday, May 31, 2015
Saturday, May 30, 2015
Friday, May 29, 2015
Wednesday, May 27, 2015
Tuesday, May 26, 2015
Monday, May 25, 2015
Sunday, May 24, 2015
Saturday, May 23, 2015
Friday, May 22, 2015
Thursday, May 21, 2015
Wednesday, May 20, 2015
Tuesday, May 19, 2015
Monday, May 18, 2015
Sunday, May 17, 2015
Saturday, May 16, 2015
Updated Metrics Chart 05/16/15
Bad measurements today. On the whole the left leg still seems to be trending up and the right leg is still flat.
Friday, May 15, 2015
Wednesday, May 13, 2015
Monday, May 11, 2015
Sunday, May 10, 2015
Saturday, May 9, 2015
Friday, May 8, 2015
Thursday, May 7, 2015
Tuesday, May 5, 2015
Monday, May 4, 2015
Updated metrics chart
I am beginning to think that I've hit on a good metric with the one leg stand. The charts are consistent with my experience. My right leg hasn't improved but my left leg has.
One leg stand times seem to be up on the left leg, right leg lagging. It's still very early.
Hopefully the right leg will be coming along in time. The earliest I expect to see improvement is 2 months.
Sunday, May 3, 2015
Day 20
Plenty more d-biotin has arrived, so from here on out it will all be d-biotin unless specifically noted otherwise.
Yesterday was 200 mg which seems to be the most common daily dose.
RRMS or SPMS? - It's not one or the other
It is unfortunate that we feel the need to classify our MS as either or when in all cases it is most likely both. I have seen SPMS patients have exacerbations (relapses) and I have been progressing as an RRMS patient. What separates a bad week from a relapse? Most likely not mechanism but only scale. So if your relapses are too small to be seen by your Nuero you must be SPMS?
I don't think so, but I'm sure the insurance companies do. If copaxone is doing its job (lowering relapse rate) and the patient is still progressing - does that mean they no longer need copaxone? That's a load of hogwash - but the insurance companies will surely note that glatrimar isn't FDA approved for SPMS. Ok, no worries, this patient will soon be able to take biotin (MD1003). Until they have a relapse and realize that SPMS and RRMS are not either or but both and.
Which is why I am taking copaxone AND biotin (10 mg 20x daily with sunflower seeds)
I don't think so, but I'm sure the insurance companies do. If copaxone is doing its job (lowering relapse rate) and the patient is still progressing - does that mean they no longer need copaxone? That's a load of hogwash - but the insurance companies will surely note that glatrimar isn't FDA approved for SPMS. Ok, no worries, this patient will soon be able to take biotin (MD1003). Until they have a relapse and realize that SPMS and RRMS are not either or but both and.
Which is why I am taking copaxone AND biotin (10 mg 20x daily with sunflower seeds)
Friday, May 1, 2015
Day 18
195 mg yesterday. Have my trusty travel bottle of d-biotin and sunflower seeds. Did a poor job of logging doses but didn't miss any. 11:00 dose was very late so took 1.5 doses